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Announcements
This is Fioreimy, the Princess!
She was diagnosed with Sanfilippo Syndrome at birth. It is genetic disorder that impairs her cognitive and physical capabilities. Throughout her journey, she has gone through and continues to experience many rough obstacles. With the love of God and her family, she continues to stay strong.
Because of her complications, Fioreimy is constantly hospitalized and treated. Her care is complicated and requires a lot of attention.
Even with all these complications, Fioreimy loves to smile and laugh. Her joy is our joy.
As the brother of Fioreimy, I invite you to browse through Fioreimy's Hope and read more about her story and the family she is surrounded by.
She was diagnosed with Sanfilippo Syndrome at birth. It is genetic disorder that impairs her cognitive and physical capabilities. Throughout her journey, she has gone through and continues to experience many rough obstacles. With the love of God and her family, she continues to stay strong.
Because of her complications, Fioreimy is constantly hospitalized and treated. Her care is complicated and requires a lot of attention.
Even with all these complications, Fioreimy loves to smile and laugh. Her joy is our joy.
As the brother of Fioreimy, I invite you to browse through Fioreimy's Hope and read more about her story and the family she is surrounded by.
The Story of Fioreimy/La Historia De Fioreimy
Where it all began
Fioreimy was born in the city of Santiago in the Dominican Republic on October 8th in the year 1996. Her mother, Fiordaliza, noted that during her pregnancy she knew something was wrong with Fioreimy. She noticed that her bones were cracking a lot in the womb. Without the capable technology, it was difficult to tell. At 3 months, we moved to Puerto Rico. It was easy for my mother Fiordaliza to note the differences between my development and Fioreimy's. Most of her apparent changes started during this time.
Early Signs
At 4 to 5 months there were signs that worried Fiordaliza. First of all, Fioreimy had difficulty with sitting up. She seemed like she had no balance and/or strength to keep herself sitting up and laterally supported even with back support. She also had trouble keeping her neck supported. Fiordaliza's immediately took Fioreimy to her primary care doctor. There, the doctor recommended she see a Neurologist, but there was a wait list with a wait time of one year. My mother was infuriated with the news. She did not go forward with appointment because she knew that Puerto Rico is not the place to live and be for the well being of Fioreimy.
Fiordaliza contacted her brother Freddy, who lived in New York. He mentioned that we could stay with him so we can find better medical help.
Fioreimy was born in the city of Santiago in the Dominican Republic on October 8th in the year 1996. Her mother, Fiordaliza, noted that during her pregnancy she knew something was wrong with Fioreimy. She noticed that her bones were cracking a lot in the womb. Without the capable technology, it was difficult to tell. At 3 months, we moved to Puerto Rico. It was easy for my mother Fiordaliza to note the differences between my development and Fioreimy's. Most of her apparent changes started during this time.
Early Signs
At 4 to 5 months there were signs that worried Fiordaliza. First of all, Fioreimy had difficulty with sitting up. She seemed like she had no balance and/or strength to keep herself sitting up and laterally supported even with back support. She also had trouble keeping her neck supported. Fiordaliza's immediately took Fioreimy to her primary care doctor. There, the doctor recommended she see a Neurologist, but there was a wait list with a wait time of one year. My mother was infuriated with the news. She did not go forward with appointment because she knew that Puerto Rico is not the place to live and be for the well being of Fioreimy.
Fiordaliza contacted her brother Freddy, who lived in New York. He mentioned that we could stay with him so we can find better medical help.
More Coming Soon!!